Caregiver Stress and Burnout - (2023)

family caregiving

The demands of caregiving can be exhausting and overwhelming. But there are steps you can take to rein in stress and regain a sense of balance, joy, and hope in your life.

Caregiver Stress and Burnout - (1)

What is caregiver burnout?

While caring for a loved one can be very rewarding, it also involves many stressors. And since caregiving is often a long-term challenge, the emotional impact can snowball over time. You may face years or even decades of caregiving responsibilities. It can be particularly disheartening if you feel that you’re in over your head, if there’s no hope that your family member will get better, or if, despite your best efforts, their condition is gradually deteriorating.

If the stress of caregiving is left unchecked, it can take a toll on your health, relationships, and state of mind—eventually leading to burnout, a state of emotional, mental, and physical exhaustion. And when you get to that point, both you and the person you’re caring for suffer.

That’s why taking care of yourself isn’t a luxury, it’s a necessity. Cultivating your own emotional and physical well-being isjust as important as making sure your family member gets to their doctor’s appointment or takes their medication on time.

Signs and symptoms of caregiver stress and burnout

Learning to recognize the signs of caregiver stress and burnout is important, so you can take immediate action to prevent things from becoming worse and start improving the situation for both you and the person you're caring for.

Common signs and symptoms of caregiver stress

  • Anxiety, depression, irritability.
  • Feeling tired and run down.
  • Difficulty sleeping.
  • Overreacting to minor nuisances.
  • New or worsening health problems.
  • Trouble concentrating.
  • Feeling increasingly resentful.
  • Drinking, smoking, or eating more.
  • Neglecting responsibilities.
  • Cutting back on leisure activities.

Common signs and symptoms of caregiver burnout

  • You have much less energy than you once had.
  • It seems like you catch every cold or bout of flu that’s going around.
  • You’re constantly exhausted, even after sleeping or taking a break.
  • You neglect your own needs, either because you’re too busy or you don’t care anymore.
  • Your life revolves around caregiving, but it gives you little satisfaction.
  • You have trouble relaxing, even when help is available.
  • You’re increasingly impatient and irritable with the person you’re caring for.
  • You feel helpless and hopeless.

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(Video) Caregiver Support to Relieve Stress and Burnout Symptoms

How to cope

While caring for a loved one will never be stress-free, the following tips can help you to lighten the load, avoid the symptoms of caregiver burnout, and find more balance in your life.

Avoid caregiver burnout by feeling empowered

Feeling powerless is the number one contributor to burnout and depression. And it’s an easy trap to fall into as a caregiver, especially if you feel stuck in a role you didn’t expect or helpless to change things for the better. But no matter the situation, you aren’t powerless. This is especially true when it comes to your state of mind. You can’t always get the extra time, money, or physical assistance you’d like, but you can always get more happiness and hope.

Practice acceptance. When faced with the unfairness of a loved one's illness or the burden of caregiving, there's often a need to make sense of the situation and ask “Why?” But you can spend a tremendous amount of energy dwelling on things you can't change and for which there are no clear answers. And at the end of the day, you won't feel any better. Try to avoid the emotional trap of feeling sorry for yourself or searching for someone to blame.

Embrace your caregiving choice. Acknowledge that, despite any resentments or burdens you feel, you have made a conscious choice to provide care. Focus on the positive reasons behind that choice. Perhaps you provide care to repay your parent for the care they gave you growing up. Or maybe it’s because of your values or the example you want to set for your children. These deep, meaningful motivations can help sustain you through difficult times.

Look for the silver lining. Think about the ways caregiving has made you stronger or how it's brought you closer to the person you're taking care of or to other family members.

Don't let caregiving take over your life. Since it's easier to accept a difficult situation when there are other areas of your life that are rewarding, it's important not to let caregiving take over your whole existence. Invest in things that give you meaning and purpose whether it's your family, church, a favorite hobby, or your career.

Focus on the things you can control.You can’t wish for more hours in the day or force your brother to help out more. Rather than stressing out over things you can’t control, focus on how you choose to react to problems.

Celebrate the small victories. If you start to feel discouraged, remind yourself that all your efforts matter. You don’t have to cure your loved one’s illness to make a difference. Don’t underestimate the importance of making your loved one feel more safe, comfortable, and loved!

Get the appreciation you need

Feeling appreciated can go a long way toward not only accepting a stressful situation, but enjoying life more. Studies show that caregivers who feel appreciated experience greater physical and emotional health. Caregiving actually makes them happier and healthier, despite its demands. But what can you do if the person you’re caring for is no longer able to feel or show their appreciation for your time and efforts?

Imagine how your loved one would respond if they were healthy.If they weren’t preoccupied with illness or pain (or disabled by dementia), how would your loved one feel about the love and care you’re giving? Remind yourself that the person would express gratitude if they were able.

Applaud your own efforts.If you’re not getting external validation, find ways to acknowledge and reward yourself. Remind yourself of how much you are helping. If you need something more concrete, try making a list of all the ways your caregiving is making a difference. Refer back to it when you start to feel low.

Talk to a supportive family member or friend.Positive reinforcement doesn’t have to come from the person you’re caring for. When you’re feeling unappreciated, turn to friends and family who will listen to you and acknowledge your efforts.

Ask for caregiving help

Taking on all of the responsibilities of caregiving without regular breaks or assistance is a surefire recipe for caregiver burnout. Don’t try to do it all alone.

Look into respite care.Enlist friends and family who live near you to run errands, bring a hot meal, or watch the patient so you can take a well-deserved break. Volunteers or paid help can also provide in-home services, either occasionally or on a regular basis. Or you can explore out-of-home respite programs such as adult day care centers and nursing homes.

Speak up.Don’t expect friends and family members to automatically know what you need or how you’re feeling. Be up front about what’s going on with you and the person that you’re caring for. If you have concerns or thoughts about how to improve the situation, express them, even if you’re unsure of how they’ll be received. Start a dialogue.

(Video) Caregiver Burnout Community health education Ellonjia Tillman

Spread the responsibility.Try to get as many family members involved as possible. Even someone who lives far away can help. You may also want to divide up caregiving tasks. One person can take care of medical responsibilities, another with finances and bills, and another with groceries and errands, for example.

Set up a regular check-in.Ask a family member, friend, or volunteer from your church or senior center to call you at a regular time (daily, weekly, or as often as you think you need it). This person can help you spread status updates and coordinate with other family members.

Say “yes” when someone offers assistance.Don’t be shy about accepting help. Let people feel good about supporting you. It’s smart to have a list ready of small tasks that others could easily take care of, such as picking up groceries or driving your loved one to an appointment.

Be willing to relinquish somecontrol.Delegating is one thing, trying to control every aspect of care is another. People will be less likely to help if you micromanage, give orders, or insist on doing things your way.

Give yourself a break

As a busy caregiver, leisure time may seem like an impossible luxury. But you owe it to yourself—as well as to the person you’re caring for—to carve it into your schedule. Give yourself permission to rest and to do things that you enjoy on a daily basis. You will be a better caregiver for it.

There’s a difference between being busy and being productive. If you’re not regularly taking time-off to de-stress and recharge your batteries, you’ll end up accomplishing less in the long run. After a break, you should feel more energetic and focused, so you’ll quickly make up for your relaxation time.

Maintain your personal relationships.Don’t let your friendships get lost in the shuffle of caregiving. These relationships will help sustain you and keep you positive. If it’s difficult to leave the house, invite friends over to visit with you over coffee, tea, or dinner.

Share your feelings. The simple act of expressing what you're going through can be very cathartic. Sharing your feelings with family or friends won't make you a burden to others. In fact, most people will be flattered that you trust them enough to confide in them, and it will only strengthen your bond.

Prioritize activities that bring you enjoyment.Make regular time for hobbies that bring you happiness, whether it’s reading, working in the garden, tinkering in your workshop, knitting, playing with the dogs, or watching the game.

Find ways to pamper yourself.Small luxuries can go a long way towards relieving stress and boosting your spirits. Light candles and take a long bath. Ask your spouse for a back rub. Get a manicure. Buy fresh flowers for the house. Whatever makes you feel special.

Make yourself laugh.Laughter is an excellent antidote to stress—and a little goes a long way. Read a funny book, watch a comedy, or call a friend who makes you laugh. And whenever you can, try to find the humor in everyday situations.

Get out of the house.Seek out friends, family, and respite care providers to step in with caregiving so you can have some time away from the home.

Take care of your own health

Think of your body like a car. With the right fuel and proper maintenance, it will run reliably and well. Neglect its upkeep and it will start to give you trouble. Don’t add to the stress of your caregiving situation with avoidable health woes.

Keep on top of your doctor visits. It’s easy to forget about your own health when you’re busy with a loved one’s care. Don’t skip check-ups or medical appointments. You need to be healthy in order to take good care of your family member.

Exercise. When you’re stressed and tired, the last thing you feel like doing is exercising. But you’ll feel better afterwards. Exercise is a powerful stress reliever and mood enhancer. Aim for a minimum of 30 minutes on most days—break it up into three 10-minute sessions if that's easier. When you exercise regularly, you’ll also find it boosts your energy level and helps you fight fatigue.

Practice a relaxation technique. A daily relaxation or meditation practice can help you relieve stress and boost feelings of joy and well-being. Try yoga, deep breathing, progressive muscle relaxation, or mindfulness meditation. Even a few minutes in the middle of an overwhelming day can help you feel more centered.

Eat well. Nourish your body with fresh fruit, vegetables, lean protein, and healthy fats such as fish, nuts, and olive oil. Unlike sugar and caffeine—which provide a quick pick-me-up and an even quicker crash—these foods will fuel you with steady energy.

Don’t skimp on sleep. Cutting back on time in bed is counterproductive—at least if your goal is to accomplish more. Most people need more sleep than they think (8 hours is the norm). When you get less, your mood, energy, productivity, and ability to handle stress will suffer.

(Video) Quick Tips: Tools to Prevent Caregiver Burnout


Join a caregiver support group

A caregiver support group is a great way to share your troubles and find people who are going through similar experiences each day. If you can't leave the house, many online groups are also available.

In most support groups, you'll talk about your problems and listen to others talk; you'll not only get help, but you'll also be able to help others. Most importantly, you'll find out that you're not alone. You’ll feel better knowing that other people are in the same situation, and their knowledge can be invaluable, especially if they’re caring for someone with the same illness as your loved one.

Local vs. Online Support Groups for Caregivers
Local support groups:Online support groups:
People live near each other and meet in a given place each week or month.People are from all over the world and have similar problems.
Meetings provide you with face-to-face contact and a chance to make new friends who live near you.You meet online, through email lists, websites, message boards, or social media.
The meetings get you out of the house, get you moving, provide a social outlet, and reduce feelings of isolation.You can get support without leaving your house, which is good for people with limited mobility or transportation problems.
Meetings are at a set time. You will need to attend them regularly to get the full benefit of the group.You can access the group whenever it's convenient for you or when you most need help.
Since the people in the support group are from your area, they'll be more familiar with local resources and issues.If your problem is very unusual, a rare disease, for example, there may not be enough people for a local group, but there will always be enough people online.

To find a community support group, check the yellow pages, ask your doctor or hospital, or call a local organization that deals with your loved one's health problem. To find an online support group, visit the websites of organizations dedicated to your loved one's health problem.

Author: Melinda Smith, M.A.

    • References

      Trauma- and Stressor-Related Disorders. (2013). In Diagnostic and Statistical Manual of Mental Disorders. American Psychiatric Association.

      “ICD-11 for Mortality and Morbidity Statistics.” Accessed November 16, 2021.

      Maslach, Christina, and Michael P. Leiter. “Understanding the Burnout Experience: Recent Research and Its Implications for Psychiatry.” World Psychiatry15, no. 2 (June 2016): 103–11.

      Koutsimani, Panagiota, Anthony Montgomery, and Katerina Georganta. “The Relationship Between Burnout, Depression, and Anxiety: A Systematic Review and Meta-Analysis.” Frontiers in Psychology 10 (March 13, 2019): 284.

      Information, National Center for Biotechnology, U. S. National Library of Medicine 8600 Rockville Pike, Bethesda MD, and 20894 Usa. Depression: What Is Burnout? InformedHealth.Org [Internet]. Institute for Quality and Efficiency in Health Care (IQWiG), 2020.

      Kim, DeokJu. “Relationships between Caregiving Stress, Depression, and Self-Esteem in Family Caregivers of Adults with a Disability.” Occupational Therapy International 2017 (October 17, 2017): 1686143.

      Schulz, Richard, and Paula R. Sherwood. “Physical and Mental Health Effects of Family Caregiving.” The American Journal of Nursing 108, no. 9 Suppl (September 2008): 23–27.

      Liu, Zhu, Catrina Heffernan, and Jie Tan. “Caregiver Burden: A Concept Analysis.” International Journal of Nursing Sciences 7, no. 4 (October 10, 2020): 438–45.

      Hawken, Tamsyn, Julie Turner-Cobb, and Julie Barnett. “Coping and Adjustment in Caregivers: A Systematic Review.” Health Psychology Open 5, no. 2 (July 1, 2018): 2055102918810659.

      (Video) CAREGIVER BURNOUT NO MORE! Survival Tip for Caregivers

      Sullivan, Amy Burleson, and Deborah Miller. “Who Is Taking Care of the Caregiver?” Journal of Patient Experience 2, no. 1 (May 1, 2015): 7–12.

      Krishnan, Shilpa, Michele K. York, Deborah Backus, and Patricia C. Heyn. “Coping With Caregiver Burnout When Caring for a Person With Neurodegenerative Disease: A Guide for Caregivers.” Archives of Physical Medicine and Rehabilitation 98, no. 4 (April 1, 2017): 805–7.

      Kazemi, Azar, Jalil Azimian, Maryam Mafi, Kelly-Ann Allen, and Seyedeh Ameneh Motalebi. “Caregiver Burden and Coping Strategies in Caregivers of Older Patients with Stroke.” BMC Psychology 9, no. 1 (April 1, 2021): 51.

    Get more help

    Circle of Care: A Guidebook for Mental Health Caregivers – In-depth guide for those who care for someone with a mental health condition.(National Alliance for Caregiving)

    Family Caregiver Alliance – Nonprofit organization dedicated to improving the quality of life for family caregivers and the people who receive their care.

    Family Caregiver Toolbox – Tips, resources, and tools for family caregivers. (Caregiver Action Network)

    Find caregiver services in the U.S.:

    Family Care Navigator – Including eldercare services. (Family Caregiver Alliance)

    Resources for Caregivers – Support for caregivers of adults, children, individuals with disabilities and mental disorders, veterans, and more. (American Psychological Association)

    Elder Care Services Search– Services for older adults and their carers. (The U.S. Department of Aging)

    Respite Locator– Services in both the U.S. and Canada. (Arch National Respite Network)

    Find caregiver services in other countries:

    In the UK: Your Guide to Care and Support–NHS services, including respite care. (NHS)

    Australia: Support for Families and Carers – Resources and information. (Carers Australia)

    New Zealand: Carers New Zealand– Help and advice, including guidance on respite care services. (Carers NZ)

    Canada: Services for Seniors(PDF) – Including in-home support. (Government of Canada)

    (Video) Caring for the Caregiver

    Around the web

    Last updated: October 12, 2022


    How do you deal with caregiver stress and burnout? ›

    4 things you can do to alleviate caregiver stress
    1. Take care of your own health. ...
    2. Enlist others. ...
    3. Break away occasionally. ...
    4. Create a support system for yourself. ...
    5. Available resources.
    17 Oct 2016

    What are the 2 common stresses as caregiver? ›

    Studies show that 30 to 40% of dementia caregiver suffer from both depression and emotional stress. Caregivers report that they are stressed and frustrated. 16% of caregivers are emotionally strained, while 26% state that taking care of their loved one is had on them emotionally.

    Can you get PTSD from caregiving? ›

    Indeed, family caregivers, while struggling to adjust to new responsibilities and roles [5], may experience negative psychological outcomes that include new or worsening depression, anxiety, and Post-Traumatic Stress Disorder (PTSD) symptoms [6].

    When Should a caregiver give up? ›

    Signs such as avoiding the loved one, anger, fatigue, depression, impaired sleep, poor health, irritability or that terrible sense that there is “no light at the end of the tunnel” are warnings that the caregiver needs time off and support with caregiving responsibilities.

    What are the ten signs of stress in caregivers? ›

    Signs of Caregiver Burnout

    Debilitating depression. Persistent anxiety, anger, or guilt. Extreme irritability or anger with the dementia patient. Decreased overall life satisfaction.

    What do caregivers need most? ›

    Carla Johnson: Care givers need love and respect for what they do. They also need someone to listen to their needs without passing judgment or giving them advice. They need a little time for themselves as well.

    What is caregiver anxiety? ›

    Caregiver anxiety can be caused by many things, such as: Managing many responsibilities. Having to do medical tasks you aren't prepared for. Feeling like you don't have control over your own life. Concerns about your loved one's well-being.

    What does carers burnout feel like? ›

    You may be experiencing caregiver burnout if these symptoms apply to you: Physical and emotional fatigue. Feeling hopeless, isolated, and/or trapped. Irritability, tearfulness, or emotional numbness.

    What is the name for caregiver stress? ›

    Caregiver burnout is a state of physical, emotional and mental exhaustion. Stressed caregivers may experience fatigue, anxiety and depression. Some ways to prevent burnout include joining a caregiver support group and using respite care services.

    What is caregiver trauma? ›

    The unofficial diagnosis for these folks is best described as post traumatic caregiving, or PTCG for short. PTCG can be thought of as a precursor to PTSD, having the added dimensions that the triggering event has happened to a loved one and often involves a cascade of critical moments.

    How do I move on after being a caregiver? ›

    Taking Care Of Yourself & Managing Time After Being A Caregiver
    1. Give yourself permission and time to grieve. ...
    2. Use healthy and appropriate coping mechanisms. ...
    3. Ask for and accept help. ...
    4. Take care of your health. ...
    5. Join a support group. ...
    6. Delay major decisions. ...
    7. Embrace new routines. ...
    8. Reevaluate your relationships.
    28 Sept 2018

    What is the most stressful in caregiver? ›

    Caregiver stress is due to the emotional and physical strain of caregiving. Caregivers report much higher levels of stress than people who are not caregivers. Many caregivers are providing help or are "on call" almost all day. Sometimes, this means there is little time for work or other family members or friends.

    Why do caregivers get angry? ›

    Sometimes, as a caregiver, you feel that you can't do anything right or that things just don't go as planned no matter what you do or how hard you try. And if you are tired, you are more likely to get frustrated. Frustration may lead to stress eating, substance abuse, and a higher likelihood of losing your temper.

    Why caregiving is so hard? ›

    Caregiving is also hard because you often see many changes in your loved one: The person you're caring for may not know you anymore. He or she may be too ill to talk or follow simple requests. He or she may have behavior problems, like yelling, hitting, or wandering away from home.

    What is the most difficult part of caregiving? ›

    Isolation – Caregivers can often feel cut off from the outside world. So much time and energy is spent caring for someone else, caregivers often don't have time to take care of themselves. If you start to feel isolated, reach out to close friends and family to see if they are able to help.

    What is caregiver guilt? ›

    Caregivers often carry around undeserved guilt, believing that they aren't doing enough for their loved ones. This guilt can make the caregiving role even more stressful than it already is. One might ask why a caregiver feels guilty when they're doing such a courageous job.

    What should you not tell a caregiver? ›

    There are some things you should not say or tell a caregiver who is caring for your loved one.
    • “My mother has had mental health problems her whole life.” ...
    • “You are doing it all wrong.” ...
    • “I need you to stay late to complete some additional tasks.” ...
    • “Your accent is difficult to understand.”
    14 Sept 2022

    What does compassion fatigue look like? ›

    Warning signs of compassion fatigue

    feelings of helplessness and powerlessness in the face of patient suffering. reduced feelings of empathy and sensitivity. feeling overwhelmed and exhausted by work demands. feeling detached, numb and emotionally disconnected.

    What can caregiver stress lead to? ›

    “If the stress of caregiving isn't addressed, it can lead to health problems, such as depression, anxiety, obesity and serious chronic diseases like heart disease and diabetes,” explains Laura Kotler-Klein, MSS, LCSW, DSW, social work manager at the Hospital of the University of Pennsylvania.

    Does caregiving cause psychological stress? ›

    When it comes to life's stressors, most people would put caregiving at the top of the list. But according to Peter Vitaliano, a professor of psychiatry and psychology at the University of Washington, there never have been data actually showing caregiving causes psychological distress.

    What causes stress in caregivers? ›

    Caregiver stress is due to the emotional and physical strain of caregiving. Caregivers report much higher levels of stress than people who are not caregivers. Many caregivers are providing help or are "on call" almost all day. Sometimes, this means there is little time for work or other family members or friends.

    What can caregiver stress lead to? ›

    “If the stress of caregiving isn't addressed, it can lead to health problems, such as depression, anxiety, obesity and serious chronic diseases like heart disease and diabetes,” explains Laura Kotler-Klein, MSS, LCSW, DSW, social work manager at the Hospital of the University of Pennsylvania.

    What are the signs of caregiver burnout? ›

    14 Warning Signs of Caregiver Burnout
    • Lack of energy.
    • Overwhelming fatigue.
    • Sleep problems (too much or too little)
    • Changes in eating habits; weight loss or gain.
    • A feeling of hopelessness.
    • Withdrawing from, or losing interest in, activities you once enjoyed.
    • Neglecting your own physical and emotional needs.

    What is caregiver anxiety? ›

    Caregiver anxiety can be caused by many things, such as: Managing many responsibilities. Having to do medical tasks you aren't prepared for. Feeling like you don't have control over your own life. Concerns about your loved one's well-being.


    1. Recorded Webinar: Tips for Coping with Caregiver Depression and Stress
    (Shield HealthCare)
    2. The Fastest Way to Recover from Burnout
    (Kati Morton)
    3. Navigating the Challenges of Caregiving for People Living with ALS
    (Les Turner ALS Foundation)
    4. Caring for the Caregiver: Addressing Anxiety & Burnout during COVID-19
    (Massachusetts Caregiver Coalition)
    5. Caregiver burnout presentation by Dr Teresa Young, PhD
    (Ohio AgrAbility)
    6. Caring for the caregivers | Frances Lewis | TEDxSnoIsleLibraries
    (TEDx Talks)
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